Whenever you use a heath or care service such as attending accident and emergency or using community care services, important information about you is collected in a patient record for that service. Collecting this information helps to ensure you get the best possible care and treatment.
The information collected about you when you use these services can also be used and provided to other organisation for purposes beyond individual care, for instance to help with:
- Improving the quality and standards of care provided
- Research into the development of new treatment
- Preventing illness and diseases
- Monitoring safety
- Planning services
All these uses help to provide better health care for you, your family and future generations. Confidential patient information about your health and care is only used like this when allowed by law.
The National data opt-out (NDOO) was introduced on 25 May 2018 and allows patients to opt out of their confidential patient information being used beyond their direct care for certain research and planning purposes.
All NHS organisations in England must comply with the NDOO from 31 March 2022, which means that NHS South East London Integrated Care Board (SELICB) must ensure that where any patient personal data is used or shared, that it is done so lawfully and, that NDOO has not been applied.
It should be noted that the NDOO does not apply in all circumstances of data sharing, e.g. where patients have explicitly consented to share their data, nor to aggregated or anonymised data, but instead is intended to cover the use of confidential data without consent.
For the majority of the ICB’s work, we do not need to use personal/confidential data. The applicability of the NDOO is therefore limited for the data processing carried out by the ICB. Our privacy notices below give more details on the type of data that ICB does use along with our legal basis for doing so.
Additionally, there is a type 1 opt-out that prevents information being shared outside of a GP practice for purposes other than direct care. Some patients will have a type 1 opt-out registered with their GP practice, which indicates they do not want their confidential patient information leaving the practice for research and planning purposes. These existing type 1 opt-outs will continue to be respected until the Department of Health and Social Care conducts a consultation with the National Data Guardian on their removal.
Further information on the types of data opt out are available on this page.
To ensure we maintain compliance with the NDOO, NHS South East London ICB will continually monitor its uses of confidential patient data to ensure that any to which the NDOO is likely to apply are identified as quickly as possible. This is done via the ICB’s work on information asset review.
You have a choice about whether you want your confidential patient information to be used in this way. If you are happy with this use of information you do not need to do anything. If you do choose to opt-out your confidential patient information will still be used to support your individual care.
To find out more or to register your choice to opt-out, please visit the Choose if data from your health records is shared for research and planning page on the NHS website. There, you will:
- See what is meant by confidential patient information
- Find examples of when confidential patient information is used for individual care and examples of when it is used for purposes beyond individual care
- Find out more about the benefits of sharing data
- Understand more about who uses the data
- Find out how your data is protected
- Be able to access the system to view, set or change your opt-out setting
- Find the contact telephone number if you want to know any more or set/change your opt-out by phone and
- See the situations where the opt-out will not apply.